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Talks about the baffling disease called scleroderma. This book discusses tests that are used to make the diagnosis and to monitor the disease, treatments as well as potential therapies, and theories about the cause of scleroderma, including the role of the immune system and the role of genetics.
Maureen D. Mayes
Oxford University Press Inc
Date of Publication
Family & Health: General
Place of Publication
Country of Publication
Oxford University Press Inc
2 line illustrations
Table Of Contents
PART 1: INTRODUCTION TO TERMS AND TYPES OF SCLERODERMA ; 1. What is scleroderma? ; 2. Localized scleroderma: Limited, localized, diffuse, generalized, systemic and not-so-systemic: What's in a name? ; 3. Systemic scleroderma - diffuse ; 4. Systemic scleroderma - limited ; PART 2: EPIDEMIOLOGY: WHO GETS SCLERODERMA AND WHY? ; 5. Genetic features of scleroderma: Did you get it from your parents? Can you give it to your kids? ; 6. Epidemiology of scleroderma: Number of patients, occupational links and environmental connections ; PART 3: HOW SCLERODERMA AFFECTS THE BODY ; 7. Raynaud's phenomenon, skin involvement and finger sores ; 8. Scleroderma and the kidneys ; 9. Scleroderma and the gastrointestinal tract ; 10. Scleroderma and the lungs ; 11. Scleroderma and the heart ; 12. Scleroderma and joints, tendons, muscles and nerves ; 13. Systemic scleroderma and pregnancy ; 14. Scleroderma and sexuality ; 15. Overlap syndromes and sclerodermalike conditions ; PART 4: COPING WITH SCLERODERMA ; 16. You and your doctor ; 17. Living an unpredictable life, facing an uncertain future ; Appendix 1: Criteria for the classification of systemic scleroderma ; Appendix 2: Scleroderma support groups and resource materials
Maureen Mayes, M.D. is Professor of Medicine at the University of Texas Houston Medical School, where she directs the Scleroderma Clinic. Dr Mayes has been active in scleroderma research, clinical trials and patient care for over 20 years. She is the author of multiple papers and book chapters on the subject and is a past president and director of the National Board of Directors for the United Scleroderma Foundation, and serves on its Medical Advisory Board. Her professional career has been devoted to the study and treatment of scleroderma. She is the principle investigator for the National Institutes of Health Scleroderma Registry, which seeks to identify common factors amongst patients that could explain their susceptibility to develop this disease. This book represents many years of experience in explaining this puzzling disease to patients and family members.
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