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Human Subjects Research Regulation: Perspectives on the Future by Holly Fernandez Lynch, I. Glenn Cohen (Paperback, 2014)

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Experts from different disciplines offer novel ideas for improving research oversight and protection of human subjects. The current framework for the regulation of human subjects research emerged largely in reaction to the horrors of Nazi human experimentation, revealed at the Nuremburg trials, and the Tuskegee syphilis study, conducted by U.S. government researchers from 1932 to 1972. This framework, combining elements of paternalism with efforts to preserve individual autonomy, has remained fundamentally unchanged for decades. Yet, as this book documents, it has significant flaws-including its potential to burden important research, overprotect some subjects and inadequately protect others, generate inconsistent results, and lag behind developments in how research is conducted. Invigorated by the U.S. government's first steps toward change in over twenty years, Human Subjects Research Regulation brings together the leading thinkers in this field from ethics, law, medicine, and public policy to discuss how to make the system better. The result is a collection of novel ideas-some incremental, some radical-for the future of research oversight and human subject protection. After reviewing the history of U.S. research regulations, the contributors consider such topics as risk-based regulation; research involving vulnerable populations (including military personnel, children, and prisoners); the relationships among subjects, investigators, sponsors, and institutional review boards; privacy, especially regarding biospecimens and tissue banking; and the possibility of fundamental paradigm shifts. Contributors Adam Braddock, Alexander Morgan Capron, Ellen Wright Clayton, I. Glenn Cohen, Susan Cox, Amy L. Davis, Hilary Eckert, Barbara J. Evans, Nir Eyal, Heidi Li Feldman, Benjamin Fombonne, Elisa A. Hurley, Ana S. Iltis, Gail H. Javitt, Greg Koski, Nicole Lockhart, Holly Fernandez Lynch, Michael McDonald, Michelle N. Meyer, Osagie K. Obasogie, Efthimios Parasidis, Govind Persad, Rosamond Rhodes, Suzanne M. Rivera, Zachary M. Schrag, Seema K. Shah, Jeffrey Skopek, Laura Stark, Patrick Taylor, Anne Townsend, Carol Weil, Brett A. Williams, Leslie E. Wolf

Product Identifiers

Publisher
Rosamond Rhodes, Amy L. Davis, Ana S. Iltis, Holly Fernandez Lynch, Elisa A. Hurley, Efthimios Parasidis, Adam Braddock, I. Glenn Cohen, MIT Press LTD
ISBN-13
9780262526210
eBay Product ID (ePID)
209417384

Product Key Features

Author
Holly Fernandez Lynch, I. Glenn Cohen
Publication Name
Human Subjects Research Regulation: Perspectives on the Future
Format
Paperback
Language
English
Subject
Medicine
Publication Year
2014
Type
Textbook
Number of Pages
392 Pages

Dimensions

Item Height
229mm
Item Width
152mm

Additional Product Features

Series Title
Basic Bioethics
Country/Region of Manufacture
United States
Editor
Holly Fernandez Lynch, I. Glenn Cohen

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Human Subjects Research Regulation: Perspectives on the Future by Holly Fernandez Lynch, I. Glenn Cohen (Paperback, 2014)

Best-selling in Adult Learning & University

Secrets Of Mental Math: The Mathemagician's Guide to Lightening Calculation and Amazing Maths Tricks by Arthur Benjamin, Michael Shermer (Paperback, 2006)

Never Split the Difference: Negotiating as if Your Life Depended on It by Chris Voss, Tahl Raz (Paperback, 2017)

The Falsification of History: Our Distorted Reality by John Hamer (Paperback, 2013)

The Psychology of Money: Timeless lessons on wealth, greed, and happiness by Morgan Housel (Paperback, 2020)

Die with Zero: Getting All You Can from Your Money and Your Life by Bill Perkins (Paperback, 2021)

Code of Practice for In-service Inspection and Testing of Electrical Equipment by The Institution of Engineering and Technology (Paperback, 2020)

New Functional Skills Maths Level 2 - Study & Test Practice (for 2020 & beyond) by CGP Books (Paperback, 2015)

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