Reviews"An intimate, humorous, and defiantly real guide to living with chronic illness. Jacqueline ushers the reader with intimate and humorous examples drawn from her everyday life--from passing out in parking lots, to the practicalities of dating and managing relationships, to the pain and frustration of relapse and pill diets while reminding the reader at every turn: Never let your illness define you. An important antidote to the dogmatic 'kale and vitamins' tone of most 'self-help' literature." --Alexa Tsoulis-Reay , senior writer, New York magazine, "Just as in her blog, Ilana Jacqueline continues to educate chronically ill patients with a sharp wit, insightful information, and, most of all, hope . I would buy this for anyone going through life's journey with the extra burden of ill health to give them effective tools and stories that will support them, and of course, a few good belly laughs." -- Carri Levy , creator of the Behind the Mystery series for Lifetime TV
Table Of ContentIntroduction 1 1. Accepting Your Life with Chronic Illness 11 2. Self-Compassion and Rising Above Self-Defeating Thoughts 21 3. What They're Going to Say About You 35 4. Making New Friendships and Salvaging Old Ones 55 5. Dating and Relationships 69 6. Creating a Support System 83 7. The World Won't Wait: School and Work 97 8. Remaining Independent 123 9. Becoming Your Own Patient Advocate 135 10. Thriving with Chronic Illness 159 Acknowledgments 167 Appendix: Online Resources 169 References 195
SynopsisIn this much-needed guide, popular blogger Ilana Jacqueline writes poignantly about her experience living with two debilitating, yet invisible autoimmune diseases, and offers sound advice and practical tips for living with a chronic illness or disability that others can't see. Readers will learn to deal with doctors who don't understand, are of little or no help, or outright dismiss their condition. They will also learn how to navigate friendships, family, relationships, work, and school; overcome body image and self-esteem issues; become their own best advocate; create a support system; and live an engaged and values-driven life., "An important antidote to the dogmatic 'kale and vitamins' tone of most 'self-help' literature." --Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood--and that's on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see--such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition--from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You'll also learn to navigate judg-y or skeptical relatives and strangers and--most importantly--manage your medical care. Suffering from a chronic illness doesn't mean you can't live an active, engaged life. This book will show you how.
LC Classification NumberRC600.J34 2018