This book is an essential and informative guide for anyone supporting a child with FOP. This book is a truly worthwhile tool that can be used throughout the child's schooling. Living with an ultra-rare condition, such as FOP, brings challenges most people can never imagine.
This book is an essential and informative guide for anyone supporting a child with FOP. It has a brief overview of FOP, along with advice from teachers, experienced medical professionals, advisers, parents of children with FOP, and people with FOP. It covers advocating for the child, medical considerations, family support and practical tips.
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Supporting a Child with Fop
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